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Friday, May 18, 2012

MRI update

After a few weeks of anticipate the day arrived for Hayden's MRI. I have been worried beyond belief for this simple procedure. For adults, it is so easy we go in lay on an uncomfortable table and get our images. However, for our children it requires sedation to complete the procedure. I think back to two years ago when Hayden had his first brain MRI complete. I was a nervous wreck, it was the worst possible thing that could have happened to my sweet boy at the time. I was there during the entire preparation process and thoughts of his eyes rolling back in his head haunted me this morning. I wondered would he react the same way? Is he going to do well now that he is older and can understand exactly what happened?

We woke Hayden up around 7:15 this morning. If anyone who knows Hayden, my boy enjoys his sleep. We surprised him today by having his baby sister Julia wake him up. He was beyond excited that Julia was in his bed pulling his hair to wake up. Hayden just adores Julia. We were out the door by 7:25ish to drop Julia off at daycare and get on the road to AI.  It seems like no matter what day it is there is always traffic, we arrived at the hospital just in time for our 8:30 appointment.  They took us back immediately and we went through the normal series of medical question and then came the prep. Hayden really liked our nurses today and was of course showing them pictures from our iPhone of Cody (our dog) and his baby sister. He even asked about his teachers this morning wondering what they were doing today. Guess, that goes to show how much he likes school :) They decided to give him versed(spelling) since Hayden really is not fond of iv's. But who is?  Once that medicine kicked in you would have thought Hayden drank a bottle of wine. He was hysterically laughing at shaking the bed post. You could not help but chuckle at your child acting a little loopy. Finally, it was time for him to receive his iv sedation. I instantly started to worry remembering just how awful it was to see my sweet baby boy go to sleep. However, to my surprise this was a different reaction. Why, I am not sure. Maybe because he is older and weighs more. I truly do not know but he went to sleep without his eyes rolling back in his head and was off to his procedure. We were anticipating originally 3 hours of a study but the anesthesiologist surprised us by saying it was only 2 hours. Well, another surprise happened it was only an 1 hour and 40 minutes. He woke up quickly and what does my four year old ask for? Not mommy or daddy but the iPhone? I think we might have to remove some iPhone time since that was his first words. He happily cooperated waiting for our discharge by eating Oreo cookies. He was in heaven.

Now, we wait. I hate waiting. I wish I could speak with his neurologist and orthopedic doctor today. I want to know are we dealing with a tethered spinal cord? Did they find something else? Has his brain image changed in two years? Or are we going to find "nothing"?  We have been on the path of finding nothing for so long that I am numb to those answers. It took me awhile to agree to repeat testing again, but I feel like what Dr. Mackenzie said made sense we need to check his spine. I trust his doctors I know they are only trying to find answers. However, this is all my little boy is going to endure. He has been through so much in his four short years of life. I decided after today's evaluation we will no longer be testing unless something drastically changes.  He has been on a wonderful path of accomplishments and I truly believe he is going to keep doing amazing things.

I want to thank everyone for their support, it means a ton to our family. Without the wonderful thoughts and prayers I do not think I would have been in such a peaceful place today. Below are a few photos from today. My brave boy before and after the procedure. I love you Hayden too much as we say every night before bed.



  1. You're a wonderful mother :) Hayden is so lucky to have you!

  2. So glad the procedure went really well. Hope you dont have to wait too long on the results.